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Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes.

Published version
Peer-reviewed

Type

Article

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Authors

Robson, Joanna C 
Merkel, Peter A 
Dawson, Jill 

Abstract

The systemic vasculitides are a group of multisystem diseases, which can be life and organ threatening. High-dose immunosuppressants are required to control inflammation in vital organs, such as the kidneys, lungs, skin, joints, and eyes. Patients report a range of impacts on their health-related quality of life due to symptoms, irreversible damage, and the adverse effects of medications. The measurement of patient perspectives within clinical studies in vasculitis is essential to capture outcomes of greatest importance to patients. Validated generic, disease-specific and symptom-specific patient-reported outcomes available for use in patients with systemic vasculitis are reviewed here.

Description

Keywords

ANCA-associated vasculitis, Behcet’s syndrome, clinical trials, large-vessel vasculitis, patient-related outcomes, vasculitis

Journal Title

Patient Relat Outcome Meas

Conference Name

Journal ISSN

1179-271X
1179-271X

Volume Title

10

Publisher

Informa UK Limited