Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes.
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Peer-reviewed
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Abstract
The systemic vasculitides are a group of multisystem diseases, which can be life and organ threatening. High-dose immunosuppressants are required to control inflammation in vital organs, such as the kidneys, lungs, skin, joints, and eyes. Patients report a range of impacts on their health-related quality of life due to symptoms, irreversible damage, and the adverse effects of medications. The measurement of patient perspectives within clinical studies in vasculitis is essential to capture outcomes of greatest importance to patients. Validated generic, disease-specific and symptom-specific patient-reported outcomes available for use in patients with systemic vasculitis are reviewed here.
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Keywords
ANCA-associated vasculitis, Behcet’s syndrome, clinical trials, large-vessel vasculitis, patient-related outcomes, vasculitis
Journal Title
Patient Relat Outcome Meas
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Journal ISSN
1179-271X
1179-271X
1179-271X
Volume Title
10
Publisher
Informa UK Limited