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Passing Strategies and Performative Identities: Coping with (In)Visible Chronic Diseases

Accepted version
Peer-reviewed

Type

Article

Change log

Authors

Spratt, Tanisha 

Abstract

In this article I consider the role of passing and performance in the everyday lives of people with alkaptonuria (AKU) or vitiligo in the US. Race, LGBTQ+, gender and disability scholars have long used the term passing to describe sub-groups of people who intentionally manipulate their bodies or alter their behaviour in order to claim identities that are not socially assigned to them at birth. In this paper I demonstrate the effectiveness of the passing strategies that AKU and vitiligo “patients” use in order to mitigate their disease symptoms and render them invisible, thus enabling them to pass as “healthy” or unaffected by their condition. I further consider how “patients” who choose not to pass utilise resistance strategies in order to generate awareness of their disease and encourage funding for it. I conclude by assessing the effectiveness of these strategies in determining whether or not “patients” can pass, and the ways in which this is aided or hindered by their social and economic status.

Description

Keywords

Body image, Chronic illness, Embodiment, Identity, Passing, Race, Adaptation, Psychological, Chronic Disease, Gender Identity, Humans, Infant, Newborn

Journal Title

Journal of Medical Humanities

Conference Name

Journal ISSN

1041-3545
1573-3645

Volume Title

2019

Publisher

Springer Nature