Amended to cover a wider range of anonymised individual-level human subject data.
We received an application with various clauses struck through, which suggested the applicant was treating this agreement as an MTA. It is not meant to be an MTA, but is more like a non-negotiable licence, and we added an extra paragraph to that effect, with a little explanation. We trust this will not cause additional confusion.
With prompting from our colleagues on the NCDS (aka 1958 British Birth Cohort) we clarified section 6 of the Agreement, to preclude passing of Data to other Registered Users in the same Institution. We have asked researchers to register individually all along; this will improve accountability by allowing us to monitor whether existing Registered Users are taking up new datasets.
The access agreement we put in place at the end of 2003 has been relatively well-received - in that 18 groups have successfully applied for and received data, with another 10 requests being discussed without release of data.
However, there are two usage scenarios that we would like to accommodate and encourage more explicitly:
We've also taken the opportunity to tidy up a few other clauses.
First official release.
Substantially revised and clarified in the light of legal advice from the University of Cambridge's Research Services Division.
Removed request for statement on purpose of research.
Posted for comment.
That this agreement is not about samples was made explicit.
Initial draft.