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dc.contributor.authorCurrow, David Cen
dc.contributor.authorFarquhar, Moragen
dc.contributor.authorWard, Alicia Men
dc.contributor.authorCrawford, Gregory Ben
dc.contributor.authorAbernethy, Amy Pen
dc.date.accessioned2012-01-20T16:09:46Z
dc.date.available2012-01-20T16:09:46Z
dc.date.issued2011-11-25en
dc.identifier.issn1471-2466
dc.identifier.urihttp://www.dspace.cam.ac.uk/handle/1810/241097
dc.description.abstractAbstract Background End-stage lung disease (ESLD) is a frequent cause of death. What are the differences in the supports needed by caregivers of individuals with ESLD at end of life versus other life-limiting diagnoses? Methods The South Australian Health Omnibus is an annual, random, face-to-face, cross-sectional survey. In 2002, 2003 and 2005-2007, respondents were asked a range of questions about end-of-life care; there were approximately 3000 survey participants annually (participation rate 77.9%). Responses were standardised for the whole population. The families and friends who cared for someone with ESLD were the focus of this analysis. In addition to describing caring, respondents reported additional support that would have been helpful. Results Of 1504 deaths reported, 145 (9.6%) were due to ESLD. The ESLD cohort were older than those with other 'expected' causes of death (> 65 years of age; 92.6% versus 70.6%; p < 0.0001) and were less likely to access specialised palliative care services (38.4% versus 61.9%; p < 0.0001). For those with ESLD, the mean caring period was significantly longer at 25 months (standard deviation (SD) 24) than for 'other diagnoses' (15 months; SD 18; p < 0.0001). Domains where additional support would have been useful included physical care, information provision, and emotional and spiritual support. Conclusions Caregiver needs were similar regardless of the underlying diagnosis although access to palliative care specialist services occurred less often for ESLD patients. This was despite significantly longer periods of time for which care was provided.
dc.titleCaregivers' perceived adequacy of support in end-stage lung disease: results of a population surveyen
dc.typeArticle
dc.date.updated2012-01-20T16:09:47Z
dc.description.versionRIGHTS : This article is licensed under the BioMed Central licence at http://www.biomedcentral.com/about/license which is similar to the 'Creative Commons Attribution Licence'. In brief you may : copy, distribute, and display the work; make derivative works; or make commercial use of the work - under the following conditions: the original author must be given credit; for any reuse or distribution, it must be made clear to others what the license terms of this work are.en
dc.language.rfc3066en
dc.rights.holderCurrow et al.; licensee BioMed Central Ltd.
prism.publicationDate2011en
dcterms.dateAccepted2011-11-25en
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserveden
rioxxterms.licenseref.startdate2011-11-25en
dc.contributor.orcidFarquhar, Morag [0000-0001-7991-7679]
dc.identifier.eissn1471-2466
rioxxterms.typeJournal Article/Reviewen


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