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dc.contributor.authorGao, Luen
dc.contributor.authorGreen, Emmaen
dc.contributor.authorBarnes, Lindaen
dc.contributor.authorBrayne, Carolen
dc.contributor.authorMatthews, Fionaen
dc.contributor.authorRobinson, Louiseen
dc.contributor.authorArthur, Antonyen
dc.date.accessioned2015-09-02T13:24:50Z
dc.date.available2015-09-02T13:24:50Z
dc.date.issued2015-08-14en
dc.identifier.citationAge and Ageing 2015, 44(5), 867-873. DOI: 10.1093/ageing/afv101en
dc.identifier.issn0002-0729
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/250432
dc.description.abstract$\textbf{Background:}$ non-participation in epidemiological studies threatens the generalisability of findings. $\textbf{Objective:}$ to investigate the change in non-participation between the Medical Research Council Cognitive Function and Ageing Study (CFAS) I and II. $\textbf{Design:}$ a comparison of two epidemiological studies of older people using identical methods. $\textbf{Setting:}$ three geographical areas of the United Kingdom. $\textbf{Subjects:}$ older people aged 65 years and over. $\textbf{Methods:}$ the two studies were conducted approximately two decades apart between 1989 and 1994 (CFAS I) and between 2008 and 2011 (CFAS II). Random samples were drawn from primary care lists. We compared demographic factors associated with non-participation. $\textbf{Results:}$ non-participation in CFAS II was higher than in CFAS I (45.3 versus 18.3%). After adjustment for confounders, in both CFAS I and CFAS II, women were more likely to decline to take part (CFAS I: odds ratio (OR) 1.3 95% confidence interval (CI) 1.2 to 1.4; CFAS II: 1.1 95% CI 1.1 to 1.2). Deprivation was associated with non-participation in both studies (highest versus lowest Townsend deprivation quintile, CFAS I: OR 1.4 95% CI 1.2 to 1.6; CFAS II: 2.0 95% CI 1.8 to 2.2). Age was not associated with non-participation in either study (CFAS I, P = 0.21; CFAS II, P = 0.47). $\textbf{Conclusions:}$ non-participation in epidemiological studies of older people has increased substantially in the past two decades and public willingness to take part in studies of this kind would appear to be declining. As communities become more diverse and older people have increasing commitments on their time, new ways to engage prospective participants are urgently needed.
dc.description.sponsorshipThis work was supported by the Department of Health; the Medical Research Council; The National Institute of Health Research comprehensive research networks in West Anglia and Trent and the dementias and neurodegenerative disease research networks in Newcastle (grant number G9901400, G0601022). F.E.M. is supported by the MRC U105292687. The funders had no role in the design, implementation, analysis or interpretation of the study.
dc.languageEnglishen
dc.language.isoenen
dc.publisherOxford University Press
dc.rightsAttribution 2.0 UK: England & Wales*
dc.rights.urihttp://creativecommons.org/licenses/by/2.0/uk/*
dc.subjectnon-participationen
dc.subjectepidemiological studyen
dc.subjectolder peopleen
dc.titleChanging non-participation in epidemiological studies of older people: evidence from the Cognitive Function and Ageing Study I and IIen
dc.typeArticle
dc.description.versionThis is the final version. It is available from Oxford University Press via http://dx.doi.org/10.1093/ageing/afv101en
prism.endingPage873
prism.publicationDate2015en
prism.publicationNameAge and Ageingen
prism.startingPage867
prism.volume44en
dc.rioxxterms.funderMRC
dc.rioxxterms.funderNIHR
dc.rioxxterms.projectidG9901400
dc.rioxxterms.projectidG0601022
dc.rioxxterms.projectidU105292687
dcterms.dateAccepted2015-06-17en
rioxxterms.versionofrecord10.1093/ageing/afv101en
rioxxterms.versionVoR
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserveden
rioxxterms.licenseref.startdate2015-08-14en
dc.contributor.orcidGao, Lu [0000-0003-3353-1855]
dc.contributor.orcidGreen, Emma [0000-0002-8687-5590]
dc.contributor.orcidBarnes, Linda [0000-0003-2560-4997]
dc.contributor.orcidBrayne, Carol [0000-0001-5307-663X]
dc.contributor.orcidMatthews, Fiona [0000-0002-1728-2388]
dc.identifier.eissn1468-2834
rioxxterms.typeJournal Article/Reviewen
pubs.funder-project-idMRC (G0601022)
pubs.funder-project-idMRC (G9901400)


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Attribution 2.0 UK: England & Wales
Except where otherwise noted, this item's licence is described as Attribution 2.0 UK: England & Wales