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The role of the Carer Support Needs Assessment Tool in palliative home care: A qualitative study of practitioners' perspectives of its impact and mechanisms of action.


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Authors

Austin, Lynn 
Grande, Gunn 

Abstract

BACKGROUND: The importance of supporting family carers is well recognised in healthcare policy. The Carer Support Needs Assessment Tool is an evidence-based, comprehensive measure of carer support needs to facilitate carer support in palliative home care. AIM: To examine practitioner perspectives of the role of the Carer Support Needs Assessment Tool intervention in palliative home care to identify its impact and mechanisms of action. DESIGN: Qualitative - practitioner accounts of implementation (interviews, focus groups, reflective audio diaries) plus researcher field notes. SETTING/PARTICIPANTS: A total of 29 staff members from two hospice home-care services - contrasting geographical locations, different service sizes and staff composition. A thematic analysis was conducted. RESULTS: Existing approaches to identification of carer needs were informal and unstructured. Practitioners expressed some concerns, pre-implementation, about negative impacts of the Carer Support Needs Assessment Tool on carers and expectations raised about support available. In contrast, post-implementation, the Carer Support Needs Assessment Tool provided positive impacts when used as part of a carer-led assessment and support process: it made support needs visible, legitimised support for carers and opened up different conversations with carers. The mechanisms of action that enabled the Carer Support Needs Assessment Tool to make a difference were creating space for the separate needs of carers, providing an opportunity for carers to express support needs and responding to carers' self-defined priorities. CONCLUSION: The Carer Support Needs Assessment Tool delivered benefits through a change in practice to an identifiable, separate assessment process for carers, facilitated by practitioners but carer-led. Used routinely with all carers, the Carer Support Needs Assessment Tool has the potential to normalise carer assessment and support, facilitate delivery of carer-identified support and enable effective targeting of resources.

Description

Keywords

Carers, evidence-based practice, expressed need, needs assessment, palliative care, qualitative research, Caregivers, Focus Groups, Home Care Services, Hospice Care, Humans, Interviews as Topic, Needs Assessment, Palliative Care, Patient Care Team, Qualitative Research, Social Support

Journal Title

Palliat Med

Conference Name

Journal ISSN

0269-2163
1477-030X

Volume Title

Publisher

SAGE Publications
Sponsorship
The pilot work was funded by the Phillip Poole-Wilson Seed Corn Fund, the BUPA Foundation (Grant reference number 22094791). The feasibility study was supported by a grant from Dimbleby Cancer Care Research Fund.