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dc.contributor.authorFord, Catherine Elaine Longworthen
dc.contributor.authorMalley, Donnaen
dc.contributor.authorBateman, Andrewen
dc.contributor.authorClare, Isabelen
dc.contributor.authorWagner, Adam Pen
dc.contributor.authorGracey, Fergusen
dc.date.accessioned2016-06-03T15:50:04Z
dc.date.available2016-06-03T15:50:04Z
dc.date.issued2016-06-23en
dc.identifier.issn1053-8135
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/256164
dc.description.abstractBACKGROUND: Outcome measurement challenges rehabilitation services to select tools that promote stakeholder engagement in measuring complex interventions. OBJECTIVES: To examine the suitability of outcome measures for complex post-acute acquired brain injury (ABI) rehabilitation interventions, report outcomes of a holistic, neuropsychological ABI rehabilitation program and propose a simple way of visualizing complex outcomes. METHODS: Patient/carer reported outcome measures (PROMS), experience measures (PREMS) and staff-rated measures were collected for consecutive admissions over 1 year to an 18-week holistic, neuropsychological rehabilitation programme at baseline, 18 weeks and 3- and 6-month follow-up. RESULTS: Engagement with outcome measurement was poorest for carers and at follow-up for all stakeholders. Dependence, abilities, adjustment, unmet needs, symptomatology including executive dysfunction, and self-reassurance showed improvements at 18 weeks. Adjustment, social participation, perceived health, symptomatology including dysexecutive difficulties, and anxiety were worse at baseline for those who did not complete rehabilitation, than those who did. A radar plot facilitated outcome visualization. CONCLUSIONS: Engagement with outcome measurement was best when time and support were provided. Supplementing patient- with staff-rated and attendance measures may explain missing data and help quantify healthcare needs. The MPAI4, EBIQ and DEX-R appeared suitable measures to evaluate outcomes and distinguish those completing and not completing neuropsychological rehabilitation.
dc.languageengen
dc.language.isoenen
dc.publisherIOS
dc.subjectBrain injuriesen
dc.subjecthealth services researchen
dc.subjectneuropsychologyen
dc.subjectoutcome and process assessmenten
dc.subjectrehabilitationen
dc.subjectstrokeen
dc.subjectAdolescenten
dc.subjectAdulten
dc.subjectAnxietyen
dc.subjectBrain Injuriesen
dc.subjectCaregiversen
dc.subjectFemaleen
dc.subjectFollow-Up Studiesen
dc.subjectHospitalizationen
dc.subjectHumansen
dc.subjectMaleen
dc.subjectMiddle Ageden
dc.subjectOutcome Assessment, Health Careen
dc.subjectSelf Reporten
dc.subjectYoung Adulten
dc.titleSelection and visualisation of outcome measures for complex post-acute acquired brain injury rehabilitation interventions.en
dc.typeArticle
prism.endingPage79
prism.issueIdentifier1en
prism.publicationDate2016en
prism.publicationNameNeuroRehabilitationen
prism.startingPage65
prism.volume39en
dc.identifier.doi10.17863/CAM.105
dcterms.dateAccepted2016-03-08en
rioxxterms.versionofrecord10.3233/NRE-161339en
rioxxterms.versionAMen
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserveden
rioxxterms.licenseref.startdate2016-06-23en
dc.contributor.orcidBateman, Andrew [0000-0002-2547-5921]
dc.contributor.orcidClare, Isabel [0000-0002-5385-008X]
dc.identifier.eissn1878-6448
rioxxterms.typeJournal Article/Reviewen
cam.issuedOnline2016-07-06en


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