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‘Haematological cancers, they’re a funny bunch’: A qualitative study of Non-Hodgkin lymphoma patient experiences of unmet supportive care needs

Accepted version
Peer-reviewed

Type

Article

Change log

Authors

Swash, B 
Hulbert-Williams, N 
Bramwell, R 

Abstract

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six Non-Hodgkin lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family, and access to relevant support services, are notable unmet needs that differ from previous findings.

Description

Keywords

cancer, clinical health psychology, healthcare, psychological distress, qualitative methods, Adult, Female, Humans, Interpersonal Relations, Lymphoma, Non-Hodgkin, Male, Qualitative Research, Social Support, Stress, Psychological

Journal Title

Journal of Health Psychology

Conference Name

Journal ISSN

1359-1053
1461-7277

Volume Title

Publisher

SAGE Publications