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dc.contributor.authorEwing, Gailen
dc.contributor.authorPenfold, Clarissaen
dc.contributor.authorBenson, Johnen
dc.contributor.authorMahadeva, Ravien
dc.contributor.authorHowson, Sophieen
dc.contributor.authorBurkin, Julieen
dc.contributor.authorBooth, Saraen
dc.contributor.authorLovick, Robertaen
dc.contributor.authorGilligan, Daviden
dc.contributor.authorTodd, Christopheren
dc.contributor.authorFarquhar, Moragen
dc.date.accessioned2016-12-08T14:55:34Z
dc.date.available2016-12-08T14:55:34Z
dc.date.issued2017-02en
dc.identifier.issn0885-3924
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/261491
dc.description.abstract$\textbf{CONTEXT}$: Carers' needs in advanced disease, and specifically in relation to breathlessness, are well evidenced. Publications on educational interventions for carers of patients with advanced disease which focus on symptoms are scarce and absent for breathlessness. $\textbf{OBJECTIVES}$: To establish current education provided by clinicians for carers of patients with breathlessness in advanced disease, views about educating carers about breathlessness and relevant outcomes for a future randomised controlled trial (RCT) of an educational intervention for carers. $\textbf{METHODS}$: Online survey completed by 365 clinicians: medical, nursing and allied health professionals from primary care, hospital and hospice. Descriptive statistics summarised respondent characteristics and survey responses, and the chi square test applied. Content analysis of free text comments. $\textbf{RESULTS}$: Most clinicians reported educating carers by educating patients at clinical contacts with patients. Carer involvement was largely an 'add-on'; an 'active' carer education strategy, where all carers were invited to attend, was not currently apparent. Clinicians endorsed the importance of educating carers about breathlessness through increasing carer confidence/control, helping patients' better self-manage breathlessness and potentially reducing admissions. Joint education with patients, giving practical advice and strategies for helping patients were advised. To inform a future trial, clinicians identified improvement in patient outcomes, particularly patient quality of life, as very important in enhancing clinician adoption of an educational intervention for carers. $\textbf{CONCLUSION}$: This survey revealed an appetite amongst clinicians for an educational intervention for carers of patients with breathlessness in advanced disease and provided important insights to underpin a future Phase II RCT.
dc.description.sponsorshipThis study was supported by a research grant from Dimbleby Cancer Care. RM is supported by the Cambridge NIHR Biomedical Research Unit.
dc.format.mediumPrint-Electronicen
dc.languageengen
dc.language.isoenen
dc.publisherElsevier
dc.titleClinicians' Views of Educational Interventions for Carers of Patients With Breathlessness Due to Advanced Disease: Findings From an Online Survey.en
dc.typeArticle
prism.endingPage271
prism.publicationDate2017en
prism.publicationNameJournal of pain and symptom managementen
prism.startingPage265
prism.volume53en
dc.identifier.doi10.17863/CAM.6683
dcterms.dateAccepted2016-08-04en
rioxxterms.versionofrecord10.1016/j.jpainsymman.2016.08.015en
rioxxterms.versionAMen
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserveden
rioxxterms.licenseref.startdate2017-02en
dc.contributor.orcidEwing, Gail [0000-0001-9547-7247]
dc.contributor.orcidFarquhar, Morag [0000-0001-7991-7679]
dc.identifier.eissn1873-6513
rioxxterms.typeJournal Article/Reviewen
pubs.funder-project-idDimbleby Cancer Care (unknown)
pubs.funder-project-idMRC (MR/L003120/1)
pubs.funder-project-idBritish Heart Foundation (RG/08/014/24067)
rioxxterms.freetoread.startdate2017-10-08


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