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Something’s awry in the debate on patient data sharing

Accepted version
Peer-reviewed

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Type

Article

Change log

Authors

Barclay, SIG 

Abstract

In July this year, the Department of Health published Your Data: Better Security, Better Choice, Better Care. It was the UK Government’s (somewhat delayed) response to last year’s Review of Data Security, Consent and Opt-Outs of the National Data Guardian (NDG) for Health and Care as well as to the Safe Data, Safe Care review of the Care Quality Commission. Something is awry in the debate on patient data sharing. And while it is not the Government’s response that has made it so (not least because it accepts all of its trigger reports’ recommendations), it is likely to make things worse, for at least three reasons.

Description

Keywords

Access to Information, General Practitioners, Health Information Systems, Humans, Information Dissemination, Informed Consent, Medical Record Linkage, Patient Participation, United Kingdom

Journal Title

British Journal of General Practice

Conference Name

Journal ISSN

0960-1643
1478-5242

Volume Title

68

Publisher

Royal College of General Practitioners
Sponsorship
National Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (unknown)
Cambridgeshire Community Services NHS Trust (7AA0026)
National Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (unknown)