Something’s awry in the debate on patient data sharing
Accepted version
Peer-reviewed
Repository URI
Repository DOI
Change log
Authors
Petrova, Mila https://orcid.org/0000-0001-7351-6815
Barclay, SIG
Abstract
In July this year, the Department of Health published Your Data: Better Security, Better Choice, Better Care. It was the UK Government’s (somewhat delayed) response to last year’s Review of Data Security, Consent and Opt-Outs of the National Data Guardian (NDG) for Health and Care as well as to the Safe Data, Safe Care review of the Care Quality Commission. Something is awry in the debate on patient data sharing. And while it is not the Government’s response that has made it so (not least because it accepts all of its trigger reports’ recommendations), it is likely to make things worse, for at least three reasons.
Description
Keywords
Access to Information, General Practitioners, Health Information Systems, Humans, Information Dissemination, Informed Consent, Medical Record Linkage, Patient Participation, United Kingdom
Journal Title
British Journal of General Practice
Conference Name
Journal ISSN
0960-1643
1478-5242
1478-5242
Volume Title
68
Publisher
Royal College of General Practitioners
Publisher DOI
Sponsorship
National Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (unknown)
Cambridgeshire Community Services NHS Trust (7AA0026)
National Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (unknown)
Cambridgeshire Community Services NHS Trust (7AA0026)
National Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (unknown)