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dc.contributor.authorSmallwood, Natasha
dc.contributor.authorCurrow, David
dc.contributor.authorBooth, Sara
dc.contributor.authorSpathis, Anna
dc.contributor.authorIrving, Louis
dc.contributor.authorPhilip, Jennifer
dc.date.accessioned2018-10-16T06:02:39Z
dc.date.available2018-10-16T06:02:39Z
dc.date.issued2018-10-15
dc.identifier.citationBMC Palliative Care. 2018 Oct 15;17(1):115
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/283635
dc.description.abstractAbstract Background Chronic obstructive pulmonary disease (COPD) guidelines recommend early access to palliative care together with optimal, disease-directed therapy for people with advanced disease, however, this occurs infrequently. This study explored the approaches of respiratory and palliative medicine specialists to palliative care and advance care planning (ACP) in advanced COPD. Methods An online survey was emailed to all specialists and trainees in respiratory medicine in Australia and New Zealand (ANZ), and to all palliative medicine specialists and trainees in ANZ and the United Kingdom. Results Five hundred seventy-seven (33.1%) responses were received, with 440 (25.2%) complete questionnaires included from 177 respiratory and 263 palliative medicine doctors. Most respiratory doctors (140, 80.9%) were very or quite comfortable providing a palliative approach themselves to people with COPD. 113 (63.8%) respiratory doctors recommended referring people with advanced COPD to specialist palliative care, mainly for access to: psychosocial and spiritual care (105, 59.3%), carer support (104, 58.5%), and end-of-life care (94, 53.1%). 432 (98.2%) participants recommended initiating ACP discussions. Palliative medicine doctors were more likely to recommend discussing: what palliative care is (p < 0.0001), what death and dying might be like (p < 0.0001) and prognosis (p = 0.004). Themes highlighted in open responses included: inadequate, fragmented models of care, with limited collaboration or support from palliative care services. Conclusions While both specialties recognised the significant palliative care and ACP needs of people with advanced COPD, in reality few patients access these elements of care. Formal collaboration and bi-directional support between respiratory and palliative medicine, are required to address these unmet needs.
dc.titleAttitudes to specialist palliative care and advance care planning in people with COPD: a multi-national survey of palliative and respiratory medicine specialists
dc.typeJournal Article
dc.date.updated2018-10-16T06:02:33Z
dc.language.rfc3066en
dc.rights.holderThe Author(s).
dc.identifier.doi10.17863/CAM.31005
rioxxterms.versionofrecord10.1186/s12904-018-0371-8


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