Telemedicine for follow-up of rare neurological disease: development and evaluation in CADASIL
Wolters Kluwer Health
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Walsh, J., & Markus, H. (2019). Telemedicine for follow-up of rare neurological disease: development and evaluation in CADASIL. Stroke https://doi.org/10.1161/STROKEAHA.118.023779Stroke
Background and Purpose Providing ongoing care for rare neurological conditions is challenging. Telemedicine can reduce patient travel. We set-up and evaluated a telemedicine service for patients with a genetic from of stroke and dementia (CADASIL). Methods 114 patients with mutation positive CADASIL (64 telemedicine, 50 face-to-face) were recruited. Patient, and clinician, satisfaction questionnaires rated the service to create a mean satisfaction score for both face-to-face and telemedicine follow-up appointments. Results There was no difference in mean(SD) patient or clinician satisfaction scores between telemedicine and face-to-face appointments (patient: 4.57(0.56) and 4.69(0.42), p=0.99; clinician: (4.55(0.49) and 4.60(0.43), p=0.44). Conclusions Telemedicine follow-up was suited to patients with stroke and dementia and offered satisfaction levels similar to that for face-to-face consultations.
Evelyn Trust (project ref 15/01)
External DOI: https://doi.org/10.1161/STROKEAHA.118.023779Stroke
This record's URL: https://www.repository.cam.ac.uk/handle/1810/288513