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dc.contributor.authorChavarria-Soley, Gabriela
dc.contributor.authorFrancis-Cartin, Fernanda
dc.contributor.authorJimenez-Gonzalez, Fabiola
dc.contributor.authorÁvila-Aguirre, Alejandro
dc.contributor.authorCastro-Gomez, Maria Jose
dc.contributor.authorRobarts, Lauren
dc.contributor.authorMiddleton, Anna
dc.contributor.authorRaventós, Henriette
dc.date.accessioned2021-02-12T13:17:51Z
dc.date.available2021-02-12T13:17:51Z
dc.date.issued2021-02-12
dc.date.submitted2020-07-14
dc.identifier.issn1741-0541
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/317546
dc.description.abstractAim: We explore attitudes from the public in Costa Rica regarding willingness to donate DNA data for research. Materials & methods: A total of 224 Costa Rican individuals answered the anonymous online survey ‘Your DNA, Your Say’. It covers attitudes toward DNA and medical data donation, trust in research professionals and concerns about consequences of reidentification. Results & conclusion: Most individuals (89%) are willing to donate their information for research purposes. When confronted with different potential uses of their data, participants are significantly less likely to donate data to for-profit researchers (34% willingness to donate). The most frequently cited concerns regarding donation of genetic data relate to possible discrimination by health/life insurance companies and employers. For the participants in the survey, the most trusted professionals are their own medical doctor and nonprofit researchers from their country. This is the first study regarding attitudes toward genetic data donation in Costa Rica.
dc.languageen
dc.publisherFuture Medicine Ltd
dc.rightsAttribution 4.0 International (CC BY 4.0)en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/en
dc.subjectResearch Article
dc.subjectattitudes
dc.subjectdata sharing
dc.subjectdonation
dc.subjectgenomics
dc.subjectsurvey
dc.titleAttitudes of Costa Rican individuals towards donation of personal genetic data for research
dc.typeArticle
dc.date.updated2021-02-12T13:17:51Z
prism.issueIdentifier0
prism.publicationNamePersonalized Medicine
prism.volume0
dc.identifier.doi10.17863/CAM.64659
dcterms.dateAccepted2020-12-10
rioxxterms.versionofrecord10.2217/pme-2020-0113
rioxxterms.versionVoR
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
dc.contributor.orcidChavarria-Soley, Gabriela [0000-0002-7153-4072]
dc.contributor.orcidFrancis-Cartin, Fernanda [0000-0002-1756-8001]
dc.contributor.orcidJimenez-Gonzalez, Fabiola [0000-0001-6504-9153]
dc.contributor.orcidÁvila-Aguirre, Alejandro [0000-0001-7171-6629]
dc.contributor.orcidCastro-Gomez, Maria Jose [0000-0002-5599-0027]
dc.contributor.orcidRobarts, Lauren [0000-0003-3893-7512]
dc.contributor.orcidMiddleton, Anna [0000-0003-3103-8098]
dc.contributor.orcidRaventós, Henriette [0000-0001-9423-8308]
dc.identifier.eissn1744-828X
pubs.funder-project-idWellcome Trust (206194)


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Attribution 4.0 International (CC BY 4.0)
Except where otherwise noted, this item's licence is described as Attribution 4.0 International (CC BY 4.0)