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dc.contributor.authorde Beaufort, Carine
dc.contributor.authorPit-Ten Cate, Ineke M
dc.contributor.authorSchierloh, Ulrike
dc.contributor.authorCohen, Nathan
dc.contributor.authorBoughton, Charlotte K
dc.contributor.authorTauschmann, Martin
dc.contributor.authorAllen, Janet M
dc.contributor.authorNagl, Katrin
dc.contributor.authorFritsch, Maria
dc.contributor.authorYong, James
dc.contributor.authorMetcalfe, Emily
dc.contributor.authorSchaeffer, Dominique
dc.contributor.authorFichelle, Muriel
dc.contributor.authorThiele, Alena G
dc.contributor.authorAbt, Daniela
dc.contributor.authorFaninger, Kerstin
dc.contributor.authorMader, Julia K
dc.contributor.authorSlegtenhorst, Sonja
dc.contributor.authorAshcroft, Nicole
dc.contributor.authorWilinska, Malgorzata E
dc.contributor.authorSibayan, Judy
dc.contributor.authorKollman, Craig
dc.contributor.authorHofer, Sabine E
dc.contributor.authorFröhlich-Reiterer, Elke
dc.contributor.authorKapellen, Thomas M
dc.contributor.authorAcerini, Carlo L
dc.contributor.authorCampbell, Fiona
dc.contributor.authorRami-Merhar, Birgit
dc.contributor.authorHovorka, Roman
dc.date.accessioned2021-07-27T23:30:10Z
dc.date.available2021-07-27T23:30:10Z
dc.date.issued2021
dc.identifier.issn1664-2392
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/325420
dc.description.abstractBackground: Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental well-being and child behavior. Methods: All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ). Results: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (<6). Parental well-being was negatively associated with HFS total (r = - 0.50, p <.05) and subscale scores (r = - 0.44, p <.05 for HFS-Worry and HFS-Behavior), child behavior (r = - 0.45, p = .05) and positively with child age and diabetes duration (r = 0.58, p <.01, r = 0.6, p <.01). HFS, parental well-being nor daytime sleepiness are associated with the HbA1c. Conclusion: Regular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention.
dc.format.mediumElectronic-eCollection
dc.languageeng
dc.publisherFrontiers Media SA
dc.rightsAll rights reserved
dc.titlePsychological Well-Being of Parents of Very Young Children With Type 1 Diabetes - Baseline Assessment.
dc.typeArticle
prism.publicationDate2021
prism.publicationNameFront Endocrinol (Lausanne)
prism.startingPage721028
prism.volume12
dc.identifier.doi10.17863/CAM.72877
dcterms.dateAccepted2021-07-26
rioxxterms.versionofrecord10.3389/fendo.2021.721028
rioxxterms.versionAM
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2021-01
dc.contributor.orcidHovorka, Roman [0000-0003-2901-461X]
dc.identifier.eissn1664-2392
rioxxterms.typeJournal Article/Review
pubs.funder-project-idWellcome Trust (100574/Z/12/Z)
pubs.funder-project-idEuropean Commission Horizon 2020 (H2020) Societal Challenges (731560)
pubs.funder-project-idCambridge University Hospitals NHS Foundation Trust (CUH) (146281)
cam.issuedOnline2021-08-12
cam.orpheus.counter4
rioxxterms.freetoread.startdate2024-07-27


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