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dc.contributor.authorCardinal, Rudolf N
dc.contributor.authorBurchell, Martin
dc.date.accessioned2022-01-28T14:45:07Z
dc.date.available2022-01-28T14:45:07Z
dc.date.issued2021
dc.identifier.issn1664-0640
dc.identifier.other34867492
dc.identifier.otherPMC8635805
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/333082
dc.descriptionFunder: National Institute for Health Research (NIHR)
dc.description.abstractCamCOPS is a free, open-source client–server system for secure data capture in the domain of psychiatry, psychology, and the clinical neurosciences. The client is a cross-platform C++ application, suitable for mobile and offline (disconnected) use. It allows touchscreen data entry by subjects/patients, researchers/clinicians, or both together. It implements a large and extensible range of tasks, from simple questionnaires to complex animated tasks. The client uses encrypted data storage and sends data <jats:italic>via</jats:italic> an encrypted network connection to a CamCOPS server. Individual institutional users set up and run their own CamCOPS server, so no data is transferred outside the hosting institution's control. The server, written in Python, provides clinically oriented and research-oriented views of tasks, including the tracking of changes over time. It provides an audit trail, export facilities (such as to an institution's primary electronic health record system), and full structured data access subject to authorization. A single CamCOPS server can support multiple research/clinical groups, each having its own identity policy (e.g., fully identifiable for clinical use; de-identified/pseudonymised for research use). Intellectual property rules regarding third-party tasks vary and CamCOPS has several mechanisms to support compliance, including for tasks that may be permitted to some institutions but not others. CamCOPS supports task scheduling and home testing via a simplified user interface. We describe the software, report local information governance approvals within part of the UK National Health Service, and describe illustrative clinical and research uses.
dc.languageeng
dc.publisherFrontiers Media SA
dc.rightsAttribution 4.0 International
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.sourcenlmid: 101545006
dc.sourceessn: 1664-0640
dc.subjectPsychiatry
dc.subjectPsychology
dc.subjectCognitive Assessment
dc.subjectClinical Informatics
dc.subjectInformation Governance
dc.subjectClinical Neurosciences
dc.subjectResearch Data Capture
dc.titleThe Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): a secure open-source client–server system for mobile research and clinical data capture
dc.typeArticle
dc.date.updated2022-01-28T14:45:06Z
prism.publicationNameFrontiers in Psychiatry
prism.volume12
dc.identifier.doi10.17863/CAM.80506
dcterms.dateAccepted2021-10-19
rioxxterms.versionofrecord10.3389/fpsyt.2021.578298
rioxxterms.versionVoR
rioxxterms.licenseref.urihttps://creativecommons.org/licenses/by/4.0/
dc.contributor.orcidCardinal, Rudolf [0000-0002-8751-5167]
dc.identifier.eissn1664-0640
pubs.funder-project-idWellcome Trust (091998/Z/10/Z)
pubs.funder-project-idMedical Research Council (MC_PC_17213)
pubs.funder-project-idCambridgeshire and Peterborough NHS Foundation Trust (CPFT) (Unknown)
pubs.funder-project-idNational Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (Unknown)
pubs.funder-project-idWellcome Trust (093875/Z/10/Z)
cam.issuedOnline2021-11-17


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Attribution 4.0 International
Except where otherwise noted, this item's licence is described as Attribution 4.0 International