Towards equitable and trustworthy genomics research.
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Publication Date
2022-02Journal Title
EBioMedicine
ISSN
2352-3964
Publisher
Elsevier BV
Volume
76
Language
eng
Type
Article
This Version
VoR
Metadata
Show full item recordCitation
Atutornu, J., Milne, R., Costa, A., Patch, C., & Middleton, A. (2022). Towards equitable and trustworthy genomics research.. EBioMedicine, 76 https://doi.org/10.1016/j.ebiom.2022.103879
Description
Funder: National Institutes of Health
Abstract
The representation of traditionally scientifically underserved groups in genomic research continues to be low despite concerns about equity and social justice and the scientific and clinical need. Among the factors that account for this are a lack of trust in the research community and limited diversity in this community. The success of the multiple initiatives that aim to improve representation relies on the willingness of underrepresented populations to make data and samples available for research and clinical use. In this narrative review, we propose that this requires building trust, and set out four approaches to demonstrating trustworthiness, including increasing diversity in the research workforce, and meaningful engagement with underrepresented communities in a culturally and linguistically appropriate manner. Capacity building globally will ensure that actual and perceived exploitation and 'helicopter' research could be eliminated.
Keywords
Diversity, inclusion, Equity, Justice, Genomics Research
Sponsorship
Wellcome Trust (108413/A/15/D.)
Identifiers
35158310, PMC8850759
External DOI: https://doi.org/10.1016/j.ebiom.2022.103879
This record's URL: https://www.repository.cam.ac.uk/handle/1810/335202
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