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Research data supporting "Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK"


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Type

Dataset

Change log

Authors

Jones, linda 
Nelder, Jenny 
Fryer, Joseph 
Alsop, Philip 

Description

Anonymised data from a 2020 UK survey of public opinion about sharing NHS health data for clinical and research purposes. Study registration https://doi.org/10.1186/ISRCTN37444142 . Preprint at https://doi.org/10.1101/2021.07.19.21260635 . Final paper in BMJ Open at https://doi.org/bmjopen-2021-057579 .

Version

Software / Usage instructions

CSV (all software) and RDS (R format).

Keywords

Data sharing, Health data, Health informatics, Mental health, Public opinion

Publisher

Sponsorship
Medical Research Council (MC_PC_17213)
Supported by a UK Medical Research Council (MRC) Mental Health Data Pathfinder award (MC_PC_17213 to RNC), and MRC grant MR/W014386/1 (Health Data Research UK Mental Health Data Hub, DATAMIND). Recruitment was supported by the NIHR CRN and the REDCap installation was supported in part by the NIHR Cambridge Biomedical Research Centre (BRC-1215-20014); the views expressed are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health and Social Care.
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