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Research data supporting EXPRESS-CJ (Exploring the social and ethical implications of risk stratified screening for society - Community jury study)


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Authors

Dennison, Rebecca 
Boscott, Rachel 
Thomas, Rae 

Description

This entry relates to data collected as part of the EXPRESS-CJ study to explore the public acceptability of using risk stratification to determine eligibility for cancer screening using community juries.

The dataset is the pseudo-anonymised transcripts from the three community juries. Consent was given by participants to share anonymised data with other responsible researchers. As consent was not given to share publicly it is not possible to add the data to the repository. Instead, the data are stored within the Primary Care Unit and researchers can request access by contacting Dr Rebecca Dennison (rl423@medschl.cam.ac.uk) or PCU_DATA@medschl.cam.ac.uk. Applicants will be required to complete a Data Access Agreement that will indicate the criteria for data access and conditions for research use and will incorporate privacy and confidentiality standards to ensure data security.

The information pack that was sent to the participants before the study and study questionnaires are attached with this record.

Version

Software / Usage instructions

No specific software is required.

Keywords

Cancer, Population screening, Risk stratification, Acceptability, Communication, Community jury

Publisher

Sponsorship
Funded by a CRUK Cambridge Centre Early Detection Pump Priming award.
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