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dc.contributor.authorJanssens, Astrid
dc.contributor.authorBlake, Sharon
dc.contributor.authorEke, Helen
dc.contributor.authorPrice, Anna
dc.contributor.authorFord, Tamsin
dc.date.accessioned2022-06-29T19:43:12Z
dc.date.available2022-06-29T19:43:12Z
dc.date.issued2022-06-20
dc.date.submitted2021-07-27
dc.identifier.issn0012-1622
dc.identifier.otherdmcn15320
dc.identifier.otherdmcn-oa-21-07-0492.r2
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/338447
dc.description.abstractAIM: To inform transitions from child to adult health services, we explored the work and roles parents take in the care of young people with attention-deficit/hyperactivity disorder (ADHD) aged 14 to 25 years old. METHOD: Using framework thematic analysis, we analysed data collected from 28 semi-structured interviews with parents of young people with ADHD to generate a typology and triangulated it against findings from 64 interviews with young people with ADHD. The interviews were carried out as part of a three-strand, interactive mixed-method study. RESULTS: An entourage typology of three parent roles was identified. Parents moved between 'manager' and 'roadie' roles as their child gradually matured. A 'superfan' role was identified which supported young people's positive self-image but may impede withdrawal from the 'manager' role. Continued parental involvement into adulthood reflected a need to maintain the balance of resources required to maintain quality of life for the whole family. INTERPRETATION: This is the first study to explore parental roles in the health care of young people with ADHD. Parents will vary in their capacity to fulfil the identified roles and step back their care as their children reach adulthood. The findings can inform intervention development to support families and transition between services.
dc.languageen
dc.publisherWiley
dc.subjectORIGINAL ARTICLE
dc.subjectORIGINAL ARTICLES
dc.titleParenting roles for young people with attention-deficit/hyperactivity disorder transitioning to adult services.
dc.typeArticle
dc.date.updated2022-06-29T19:43:12Z
prism.publicationNameDev Med Child Neurol
dc.identifier.doi10.17863/CAM.85860
dcterms.dateAccepted2022-05-18
rioxxterms.versionofrecord10.1111/dmcn.15320
rioxxterms.versionAO
rioxxterms.versionVoR
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
dc.contributor.orcidJanssens, Astrid [0000-0001-8419-0937]
dc.contributor.orcidBlake, Sharon [0000-0003-0683-9424]
dc.contributor.orcidEke, Helen [0000-0003-4781-6683]
dc.contributor.orcidPrice, Anna [0000-0001-9147-1876]
dc.contributor.orcidFord, Tamsin [0000-0001-5295-4904]
dc.identifier.eissn1469-8749
pubs.funder-project-idNIHR Evaluation Trials and Studies Coordinating Centre (14/21/52)
cam.issuedOnline2022-06-20


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