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Psychological Well-Being of Parents of Very Young Children With Type 1 Diabetes - Baseline Assessment.

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de Beaufort, Carine 
Pit-Ten Cate, Ineke M 
Schierloh, Ulrike 
Cohen, Nathan 
Boughton, Charlotte K 


BACKGROUND: Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental well-being and child behavior. METHODS: All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ). RESULTS: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (<6). Parental well-being was negatively associated with HFS total (r = - 0.50, p <.05) and subscale scores (r = - 0.44, p <.05 for HFS-Worry and HFS-Behavior), child behavior (r = - 0.45, p = .05) and positively with child age and diabetes duration (r = 0.58, p <.01, r = 0.6, p <.01). HFS, parental well-being nor daytime sleepiness are associated with the HbA1c. CONCLUSION: Regular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention.



child behavior, hypoglycemia fear, parental well-being, sleepiness, type 1 diabetes, very young children, Adult, Age of Onset, Anxiety, Child, Child Behavior, Child, Preschool, Diabetes Mellitus, Type 1, Europe, Fear, Female, Humans, Hypoglycemia, Infant, Insulin, Insulin Infusion Systems, Male, Parents, Surveys and Questionnaires

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Front Endocrinol (Lausanne)

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Frontiers Media SA


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Wellcome Trust (100574/Z/12/Z)
European Commission Horizon 2020 (H2020) Societal Challenges (731560)
Cambridge University Hospitals NHS Foundation Trust (CUH) (146281)