Repository logo

Attitudes of Costa Rican individuals towards donation of personal genetic data for research

Published version

Change log


Chavarria-Soley, Gabriela  ORCID logo
Francis-Cartin, Fernanda  ORCID logo
Jimenez-Gonzalez, Fabiola  ORCID logo
Ávila-Aguirre, Alejandro  ORCID logo
Castro-Gomez, Maria Jose  ORCID logo


Aim: We explore attitudes from the public in Costa Rica regarding willingness to donate DNA data for research. Materials & methods: A total of 224 Costa Rican individuals answered the anonymous online survey ‘Your DNA, Your Say’. It covers attitudes toward DNA and medical data donation, trust in research professionals and concerns about consequences of reidentification. Results & conclusion: Most individuals (89%) are willing to donate their information for research purposes. When confronted with different potential uses of their data, participants are significantly less likely to donate data to for-profit researchers (34% willingness to donate). The most frequently cited concerns regarding donation of genetic data relate to possible discrimination by health/life insurance companies and employers. For the participants in the survey, the most trusted professionals are their own medical doctor and nonprofit researchers from their country. This is the first study regarding attitudes toward genetic data donation in Costa Rica.



Research Article, attitudes, data sharing, donation, genomics, survey

Journal Title

Personalized Medicine

Conference Name

Journal ISSN


Volume Title



Future Medicine Ltd
Wellcome Trust (206194)