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A scoping review of information provided within degenerative cervical myelopathy education resources: Towards enhancing shared decision making.

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cam.issuedOnline2022-05-19
datacite.contributor.supervisoreditor: Fehlings, Michael G.
dc.contributor.authorUmeria, Rishi
dc.contributor.authorMowforth, Oliver
dc.contributor.authorGrodzinski, Ben
dc.contributor.authorKarimi, Zahabiya
dc.contributor.authorSadler, Iwan
dc.contributor.authorWood, Helen
dc.contributor.authorSangeorzan, Irina
dc.contributor.authorFagan, Petrea
dc.contributor.authorMurphy, Rory
dc.contributor.authorMcNair, Angus
dc.contributor.authorDavies, Benjamin
dc.contributor.orcidUmeria, Rishi [0000-0001-8918-152X]
dc.contributor.orcidMowforth, Oliver [0000-0001-6788-745X]
dc.contributor.orcidGrodzinski, Ben [0000-0001-8839-4718]
dc.date.accessioned2022-05-19T19:00:08Z
dc.date.available2022-05-19T19:00:08Z
dc.date.issued2022
dc.date.submitted2022-01-23
dc.date.updated2022-05-19T19:00:07Z
dc.description.abstractBACKGROUND: Degenerative cervical myelopathy (DCM) is a chronic neurological condition estimated to affect 1 in 50 adults. Due to its diverse impact, trajectory and management options, patient-centred care and shared decision making are essential. In this scoping review, we aim to explore whether information needs in DCM are currently being met in available DCM educational resources. This forms part of a larger Myelopathy.org project to promote shared decision making in DCM. METHODS: A search was completed encompassing MEDLINE, Embase and grey literature. Resources relevant to DCM were compiled for analysis. Resources were grouped into 5 information types: scientific literature, videos, organisations, health education websites and patient information leaflets. Resources were then further arranged into a hierarchical framework of domains and subdomains, formed through inductive analysis. Frequency statistics were employed to capture relative popularity as a surrogate marker of potential significance. RESULTS: Of 2674 resources, 150 information resources addressing DCM were identified: 115 scientific literature resources, 28 videos, 5 resources from health organisations and 2 resources from health education websites. Surgical management was the domain with the largest number of resources (66.7%, 100/150). The domain with the second largest number of resources was clinical presentation and natural history (28.7%, 43/150). Most resources (83.3%, 125/150) were designed for professionals. A minority (11.3% 17/150) were written for a lay audience or for a combined audience (3.3%, 5/150). CONCLUSION: Educational resources for DCM are largely directed at professionals and focus on surgical management. This is at odds with the needs of stakeholders in a lifelong condition that is often managed without surgery, highlighting an unmet educational need.
dc.identifier.doi10.17863/CAM.84727
dc.identifier.eissn1932-6203
dc.identifier.issn1932-6203
dc.identifier.otherpone-d-22-02227
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/337314
dc.languageen
dc.language.isoeng
dc.publisherPublic Library of Science (PLoS)
dc.publisher.urlhttp://dx.doi.org/10.1371/journal.pone.0268220
dc.subjectDecision Making, Shared
dc.subjectHumans
dc.subjectMEDLINE
dc.subjectPatient-Centered Care
dc.subjectSpinal Cord Diseases
dc.titleA scoping review of information provided within degenerative cervical myelopathy education resources: Towards enhancing shared decision making.
dc.typeArticle
dcterms.dateAccepted2022-04-25
prism.issueIdentifier5
prism.publicationNamePLoS One
prism.volume17
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
rioxxterms.versionVoR
rioxxterms.versionofrecord10.1371/journal.pone.0268220

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