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Families' experiences of central-line infection in children: a qualitative study.

Published version
Peer-reviewed

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Authors

Dixon-Woods, Mary 
Tarrant, Carolyn 

Abstract

OBJECTIVE: Central venous access devices (CVADs), often known as central lines, are important for delivering medically complex care in children, and are increasingly used for children living at home. Central line-associated bloodstream infection (CLABSI) is a serious, life-threatening complication. Although the physical consequences of CLABSIs are well documented, families' views and experiences of CLABSI are poorly understood. DESIGN: Qualitative study using semistructured interviews with participants from 11 families of a child living at home with a CVAD. PARTICIPANTS: Parents of children aged 4-12 years living at home with a CVAD. Four fathers and nine mothers participated in interviews. RESULTS: The risk of CLABSI is a constant fear for families of a child with a CVAD. Though avoiding infection is a key priority for families, it is not the only one: maintaining a sense of 'normal life' is another goal. Infection prevention and control require much work and expertise on the part of families, contributing significantly to families' physical and emotional workload. CONCLUSIONS: Living with the risk of CLABSI poses additional burdens that impact on the physical and emotional well-being of families. Services to better support families to manage these burdens are needed.

Description

Funder: Health Foundation; FundRef: http://dx.doi.org/10.13039/501100000724

Keywords

child health, health services research, paediatrics, qualitative research

Journal Title

Arch Dis Child

Conference Name

Journal ISSN

0003-9888
1468-2044

Volume Title

Publisher

BMJ
Sponsorship
Wellcome Trust (WT097899MA)