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A qualitative study investigating the experiences of young adults caring for a sibling with disability within immigrant families in the UK: “Challenges are just the constant”

Accepted version
Peer-reviewed

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Type

Article

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Abstract

Background: Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method: Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this affects their wellbeing and relationships, identify sources of support and strain, and explore the significance of balancing different cultural expectations. We used reflexive thematic analysis to analyse the transcribed data. Results: Analysis identified three themes: constant challenges, negative consequences on self and relationships, and coping strategies to overcome difficulties. Despite maintaining positive relationships with their siblings, challenges took a serious toll on young people’s psychological wellbeing and relationships. Participants used various coping strategies but desired culturally appropriate extra-familial support. Conclusions: This study has highlighted the urgent requirement for policy makers to investigate how to better support young carers from diverse backgrounds.

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Keywords

Disability, sibling relationships, wellbeing, cross-cultural values, qualitative, >

Journal Title

Journal of Intellectual and Developmental Disability

Conference Name

Journal ISSN

1366-8250
1469-9532

Volume Title

Publisher

Informa UK Limited
Sponsorship
this is not funded