A systems approach to developing user requirements for increased pulmonary rehabilitation uptake by COPD patients.

Chronic Obstructive Pulmonary Disease is a progressive lung disease associated with anxiety, depression, and reduced health-related quality of life. Pulmonary rehabilitation (PR) is a cost-effective and transformative treatment, but 31% of referred patients do not take up their PR appointment. The study aimed to develop user requirements for an intervention to increase PR uptake. A systems approach, the Engineering Better Care framework, was used to develop a system map of the PR pathway, translate evidence-based user needs into user requirements, and validate the user requirements in a stakeholder workshop. Eight user requirements addressed patient and health care practitioner needs to understand what PR entails, understand the benefits of PR and have positive conversations about PR to address patient concerns. The solution-independent user requirements can be applied to the development of any intervention sharing similar goals. The study demonstrates potential in taking a systems approach to more challenges within respiratory medicine.

Description

Acknowledgements: The authors thank the patients and their families who took part in this study, and those who contributed to the PPI work that supported the design and development of the study. The following were members of the study steering committee with project oversight of the study: Ruth Barlow (Provide Community Interest Company), Lianne Jongepier (NHS North East Essex Clinical Commissioning Group), Mike McKevitt (British Lung Foundation), Sally Singh (University Hospitals of Leicester NHS Trust) and Jenna Stockwell (British Lung Foundation). Delivery of this work was supported by the Cambridge Biomedical Research Centre. This paper presents independent research funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (grant reference number PB-PG-1215-20034). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health. The funder played no role in study design, data collection, analysis and interpretation of data, or the writing of this manuscript. Funding information for this article has been deposited with the Crossref Funder Registry.

Keywords

Humans, Pulmonary Disease, Chronic Obstructive, Quality of Life, Patient Acceptance of Health Care

Journal Title

NPJ Prim Care Respir Med

Journal ISSN

1471-4418
2055-1010

Volume Title

34

Publisher

Springer Nature

Publisher DOI

https://doi.org/10.1038/s41533-024-00370-1

Rights and licensing

Except where otherwised noted, this item's license is described as http://creativecommons.org/licenses/by/4.0/

Sponsorship

DH | National Institute for Health Research (NIHR) (PB-PG-1215-20034, PB-PG-1215-20034, PB-PG-1215-20034, PB-PG-1215-20034, PB-PG-1215-20034, PB-PG-1215-20034)

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