A decade long insight into patient views on kidney cancer care delivery.

Abstract

Patient and public involvement and engagement (PPIE) is crucial to ensure that patient care and research is relevant to patient needs and is more likely to have a positive impact. Indeed, previous research priority setting initiatives in kidney cancer, which have led to tangible research programmes, have actively involved patients and their carers (1). A continued focus on the patients and the public perspective of kidney cancer diagnosis and treatment is imperative. Kidney Cancer UK, a UK kidney cancer charity, carried out a survey of kidney cancer patients annually over the last decade. Here we report longitudinal survey results and reflect on future direction of kidney cancer care and how they link to research priorities in the UK.