Repository logo
 

European Glaucoma Society research priorities for glaucoma care.

Published version
Peer-reviewed

Repository DOI


Change log

Authors

Azuara-Blanco, Augusto  ORCID logo  https://orcid.org/0000-0002-4805-9322
McCorry, Noleen 
Georgoulas, Stelios  ORCID logo  https://orcid.org/0000-0002-7009-0908
Founti, Panayiota 

Abstract

BACKGROUND/AIMS: The goal of health research is to improve patients care and outcomes. Thus, it is essential that research addresses questions that are important to patients and clinicians. The aim of this study was to develop a list of priorities for glaucoma research involving stakeholders from different countries in Europe. METHODS: We used a three-phase method, including a two-round electronic Delphi survey and a workshop. The clinician and patient electronic surveys were conducted in parallel and independently. For phase I, the survey was distributed to patients from 27 European countries in 6 different languages, and to European Glaucoma Society members, ophthalmologists with expertise in glaucoma care, asking to name up to five research priorities. During phase II, participants were asked to rank the questions identified in phase I using a Likert scale. Phase III was a 1 day workshop with patients and clinicians. The purpose was to make decisions about the 10 most important research priorities using the top 20 priorities identified by patients and clinicians. RESULTS: In phase I, 308 patients and 150 clinicians were involved. In phase II, the highest-ranking priority for both patients and clinicians was 'treatments to restore vision'. In phase III, eight patients and four clinicians were involved. The top three priorities were 'treatments to stop sight loss', 'treatments to restore vision' and 'improved detection of worsening glaucoma'. CONCLUSION: We have developed a list of priorities for glaucoma research involving clinicians and patients from different European countries that will help guide research efforts and investment.

Description

Peer reviewed: True


Acknowledgements: We would like to thank all patients and clinicians who participated in this process and, in particular, Sarah Tayler, Asle Haukaas, Fernando Carvalhao, Deb Davidson, Kate Backhaus, Steven Tsui, Mona Krieg and Carol Bronze for their participation in phase III. We would like to thank Dr Ayla Basasoro Garmendia for the initial analyses of phase I survey answers.

Keywords

clinical trial, diagnostic tests/investigation, glaucoma, treatment medical, treatment surgery

Journal Title

Br J Ophthalmol

Conference Name

Journal ISSN

0007-1161
1468-2079

Volume Title

Publisher

BMJ
Sponsorship
European Glaucoma Society (N/A)