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dc.contributor.authorIllingworth, Josephine Len
dc.contributor.authorWatson, Peteren
dc.contributor.authorRing, Howarden
dc.identifier.citation(2014) Epilepsy & Behavior 39: 78-84en
dc.description.abstractSeizure precipitants are commonly reported in the general population of people with epilepsy. However, there has been little research in this area in people with epilepsy and intellectual disability (ID). We conducted a survey of the situations associated with increased or decreased seizure likelihood in this population. The aim of the research was to identify situations of increased seizure likelihood (SISLs) and situations of decreased seizure likelihood (SDSLs) reported by carers of people with an ID and epilepsy. Three study groups were investigated: two groups comprising individuals with ID associated with a specific genetic diagnosis – Rett syndrome or fragile X syndrome – and one group consisting of individuals with a range of other etiologies. Responses relating to 100 people were received: 44 relating to people with Rett syndrome, 25 to people with fragile X syndrome, and 31 to people whose ID had some other etiologies. Ninety-eight percent of the respondents reported at least one SISL, and 60% reported at least one SDSL. Having more seizure types and greater seizure frequency were associated with a higher number of SISLs reported. The most commonly reported SISLs and SDSLs for each of the three groups are presented. The most common SISL overall was illness, which was reported as an SISL by 71% of the respondents. There was less consensus with regard to SDSLs. These findings provide a greater understanding of when seizures occur in those with ID and epilepsy, with possible implications for adjunctive behavioral management of seizures in those with treatment-refractory epilepsy.
dc.rightsAttribution 2.0 UK: England & Wales*
dc.titleWhy do seizures occur when they do? Situations perceived to be associated with increased or decreased seizure likelihood in people withepilepsy and intellectual disabilityen
dc.description.versionThis is the final published version. It has been published by Elsevier in Epilepsy & Behavior here:
prism.publicationNameEpilepsy & Behavioren
dc.rioxxterms.funderEpilepsy Action; Homerton College, Cambridge; National Institute for Health Research
dc.contributor.orcidWatson, Peter [0000-0002-9436-0693]
rioxxterms.typeJournal Article/Reviewen

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Attribution 2.0 UK: England & Wales
Except where otherwise noted, this item's licence is described as Attribution 2.0 UK: England & Wales