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Patient engagement or information overload: patient and physician views on sharing the medical record in the acute setting.

Accepted version
Peer-reviewed

Type

Article

Change log

Authors

Fritz, Zoë 
Schlindwein, Alex 
Slowther, Anne-Marie 

Abstract

BACKGROUND: Patient and professional views about the impact of providing full real-time access to the medical record in the in-hospital setting are unknown. METHODS: Likert-scale and free-text validated questionnaire survey of physicians and patients from acute medical units in two hospitals. The questionnaire explored recent experiences; views on the formation of trust, and views on sharing either the entire medical record or a summary. RESULTS: Two-hundred and forty-eight patient questionnaires (62% response rate) and 32 physician questionnaires (21% response rate) were returned. Twenty-seven per cent of patients did not recall being told their diagnosis. Doctors and patients differed on what practices that they believed built trust.Eighty-one per cent of patients supported the idea of having access to the full medical record (for empowerment; the right to information about oneself; as an aide-memoire for discussion). Doctors feared it might provoke anxiety and change the nature of what was written. A written lay summary record was preferred by doctors and patients. CONCLUSIONS: The current system of providing information verbally to patients is inadequate. Patients want more information and are less concerned than physicians about potential negative effects of real-time access to their records. Patient access to medical records (in both full and summary forms) should be evaluated.

Description

Keywords

Access to information, autonomy, disclosure of information, ethics, medical records, Access to Information, Adolescent, Adult, Aged, Aged, 80 and over, Attitude of Health Personnel, Electronic Health Records, Health Knowledge, Attitudes, Practice, Humans, Information Dissemination, Middle Aged, Patient Participation, Physician-Patient Relations, Surveys and Questionnaires, Young Adult

Journal Title

Clin Med (Lond)

Conference Name

Journal ISSN

1470-2118
1473-4893

Volume Title

19

Publisher

Elsevier BV

Rights

All rights reserved
Sponsorship
Wellcome Trust (208213/Z/17/Z)