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dc.contributor.authorLund, Line
dc.contributor.authorRoss, Lone
dc.contributor.authorPetersen, Morten Aagaard
dc.contributor.authorBlach, Annemette
dc.contributor.authorRosted, Elizabeth
dc.contributor.authorBollig, Georg
dc.contributor.authorJuhl, Gitte Irene
dc.contributor.authorFarholt, Hanne Bollerup
dc.contributor.authorWinther, Helen
dc.contributor.authorLaursen, Louise
dc.contributor.authorHasse, Marianne
dc.contributor.authorWeensgaard, Signe
dc.contributor.authorGuldin, Mai-Britt
dc.contributor.authorEwing, Gail
dc.contributor.authorGrande, Gunn
dc.contributor.authorGroenvold, Mogens
dc.date.accessioned2020-11-02T10:11:59Z
dc.date.available2020-11-02T10:11:59Z
dc.date.issued2020-10-28
dc.date.submitted2020-05-30
dc.identifier.issn2045-435X
dc.identifier.otherbmjspcare-2020-002467
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/312318
dc.description.abstractBackground: The Carer Support Needs Assessment Tool intervention (CSNAT-I) has been shown to improve end-of-life care support for informal caregivers. This study investigated the impact of the CSNAT-I on caregivers of patients recently enrolled in specialised palliative care (SPC) at home in Denmark. Methods: A stepped-wedge cluster randomised controlled trial with nine clusters (ie, SPC teams). Outcome measures were collected using caregiver questionnaires at baseline (T0) and 2-week (T1) and 4-week (T2) follow-up. Results: A total of 437 caregivers were enrolled (control group, n=255; intervention group, n=182). No intervention effect was found on the primary outcome, caregiver strain at T1 (p=0.1865). However, positive effects were found at T1 and T2 on attention to caregivers’ well-being (p<0.0001), quality of information and communication (p<0.0001), amount of information (T1: p=0.0002; T2: p<0.0001), involvement (T1: p=0.0045; T2: p<0.0001), talking about greatest burdens (p<0.0001) and assistance in managing greatest burdens (p<0.0001). The effect sizes of these differences were medium or large and seemed to increase from T1 to T2. At T1, positive effects were found on distress (p=0.0178) and home care responsibility (p=0.0024). No effect was found on the remaining outcomes. Conclusion: Although no effect was found on caregiver strain, the CSNAT-I showed positive effects on caregiver distress, home care responsibility and key outcomes regarding caregivers’ experience of the interaction with healthcare professionals. Trial registration number: NCT03466580.
dc.languageen
dc.publisherBMJ Publishing Group
dc.rightsAll Rights Reserveden
dc.rights.urihttps://www.rioxx.net/licenses/all-rights-reserved/en
dc.subjectOriginal research
dc.subjectsupportive care
dc.subjecthome care
dc.subjectfamily management
dc.titleEffect of the Carer Support Needs Assessment Tool intervention (CSNAT-I) in the Danish specialised palliative care setting: a stepped-wedge cluster randomised controlled trial
dc.typeArticle
dc.date.updated2020-11-02T10:11:58Z
prism.publicationNameBMJ Supportive & Palliative Care
dc.identifier.doi10.17863/CAM.59411
dcterms.dateAccepted2020-09-21
rioxxterms.versionofrecord10.1136/bmjspcare-2020-002467
rioxxterms.versionVoR
dc.contributor.orcidLund, Line [0000-0001-5338-9644]
dc.identifier.eissn2045-4368
pubs.funder-project-idA.P. Moeller and Chastine Mc-Kinney Moeller Foundation (11692)
pubs.funder-project-idThe Danish Cancer Society (A8861)


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