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Understanding influences on the uptake of pulmonary rehabilitation in the East of England: an Inclusive Design/mixed-methods study protocol.

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cam.issuedOnline2018-04-24
dc.contributor.authorLiu, Yuanyuan
dc.contributor.authorDickerson, Terry
dc.contributor.authorEarly, Frances
dc.contributor.authorFuld, Jonathan
dc.contributor.authorClarkson, P John
dc.contributor.orcidLiu, Yuanyuan [0000-0003-2331-2392]
dc.date.accessioned2018-09-08T06:34:23Z
dc.date.available2018-09-08T06:34:23Z
dc.date.issued2018-04-24
dc.description.abstractINTRODUCTION: 1.2 million people in the UK have chronic obstructive pulmonary disease (COPD) that causes breathlessness, difficulty with daily activities, infections and hospitalisation. Pulmonary rehabilitation (PR), a programme of supervised exercise and education, is recommended for patients with COPD. However, only 1 in 10 of those who need it receive PR. Also, the UK National COPD Audit Programme concluded that the COPD treatment might not be accessible to people with disabilities. This paper applies an Inclusive Design approach to community-based PR service provisions. It aims to inform improvements to the PR service by identifying barriers to the uptake of PR in the COPD care journey in relation to patients' capabilities that can affect their access to PR. METHODS AND ANALYSIS: The protocol includes four steps. Step 1 will involve interviews with healthcare professionals and patients to gather insight into their experiences and produce a hierarchical task analysis of the COPD care journeys. Step 2 will estimate the service exclusion: the demand of every task on patients' capabilities will be rated by predefined scales, and the proportion of the population excluded from the service will be estimated by an exclusion calculator. Step 3 will identify the challenges of the PR service; a framework analysis will guide the data analysis of the interviews and care journey. Step 4 will propose recommendations to help patients manage their COPD care informed by the challenges identified in step 3 and refine recommendations through interviews and focus groups. ETHICS AND DISSEMINATION: The Cambridge Central Research Ethics Committee gave the study protocol a positive ethical opinion (17/EE/0136). Study results will be disseminated through peer-reviewed journals, conferences and the British Lung Foundation networks. They will also be fed into a Research for Patient Benefit project on increasing the referral and uptake of PR.
dc.format.mediumElectronic
dc.identifier.doi10.17863/CAM.27278
dc.identifier.eissn2044-6055
dc.identifier.issn2044-6055
dc.identifier.urihttps://www.repository.cam.ac.uk/handle/1810/279910
dc.languageeng
dc.language.isoeng
dc.publisherBMJ
dc.publisher.urlhttp://dx.doi.org/10.1136/bmjopen-2017-020750
dc.rightsAttribution-NonCommercial 4.0 International (CC BY-NC 4.0)
dc.subjectCOPD
dc.subjectcare journey
dc.subjectinclusive design
dc.subjectpatient-centred design
dc.subjectpatients’ capability
dc.subjectpulmonary rehabilitation
dc.subjectAdolescent
dc.subjectAdult
dc.subjectAged
dc.subjectEngland
dc.subjectFocus Groups
dc.subjectHumans
dc.subjectMiddle Aged
dc.subjectPulmonary Disease, Chronic Obstructive
dc.subjectQuality of Life
dc.subjectResearch Design
dc.subjectYoung Adult
dc.titleUnderstanding influences on the uptake of pulmonary rehabilitation in the East of England: an Inclusive Design/mixed-methods study protocol.
dc.typeArticle
dcterms.dateAccepted2018-03-20
prism.issueIdentifier4
prism.publicationDate2018
prism.publicationNameBMJ Open
prism.startingPagee020750
prism.volume8
pubs.funder-project-idNational Institute for Health Research (NIHR) (via Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) (unknown)
rioxxterms.licenseref.startdate2018-04-24
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.typeJournal Article/Review
rioxxterms.versionVoR
rioxxterms.versionofrecord10.1136/bmjopen-2017-020750

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