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Understanding inequities in access to diabetes technologies in children and young people with type 1 diabetes: Qualitative study of healthcare professionals' perspectives and views.

Accepted version
Peer-reviewed

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Abstract

AIMS: We explored healthcare professionals' perceptions and understandings of the factors and considerations underlying inequities in technology access in children and young people (CYP) with type 1 diabetes. METHODS: We interviewed (n = 29) healthcare professionals working in paediatric diabetes in England recruited from (n = 15) purposively selected sites. We analysed data thematically. RESULTS: Interviewees highlighted multiple, often overlapping barriers to accessing technology faced by CYP with type 1 diabetes from deprived and/or ethnic minority backgrounds. They described the impacts of deprivation on technology uptake, together with the complex social, ethnic and cultural factors that could also reinforce disparities in technology access. Interviewees further highlighted staffing shortfalls as a significant barrier to supporting CYP to use technology, especially those from under-represented groups who they perceived as requiring more staff time to be trained to use technology. While interviewees suggested that unconscious bias has become less prominent, they reported being less likely to recommend technology (especially pumps) to CYP/caregivers who they feared would not use it safely and effectively (e.g. those with low literacy levels). Interviewees also highlighted geographical variability in the technology commissioning process (a 'postcode lottery'). CONCLUSIONS: Our findings suggest that without targeted interventions, technology inequities may continue to persist amongst CYP from the most and least deprived areas and from white and ethnic minority groups in the United Kingdom. Additionally, our findings suggest that closing the technology gap will require large-scale governmental and health policies aimed at fostering socioeconomic, ethnic and cultural equality alongside targeted measures to improve technology accessibility.

Description

Journal Title

Diabet Med

Conference Name

Journal ISSN

0742-3071
1464-5491

Volume Title

Publisher

Wiley

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Except where otherwised noted, this item's license is described as Attribution 4.0 International
Sponsorship
Understanding Inequalities and Barriers to Accessing Diabetes Technology in Children and Young People with Type 1 Diabetes study is funded by Diabetes UK (Grant reference number: 22/0006434) with Prof Sze May Ng, OBE as Chief Investigator/grant holder and Prof Julia Lawton, Prof Mark Evens, and Prof Nick Oliver as co-investigators. The views expressed are those of the author(s) and not necessarily those of the funding body. The University of Cambridge has received salary support for MLE through the National Health Service in the East of England through the Clinical Academic Reserve.