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‘Right support, right place, right time; right mess!’ Professionals' views on factors influencing the SEND system and outcomes for children and families in England: A qualitative study

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Peer-reviewed

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Abstract

Abstract The Special Educational Needs and Disability (SEND) system in England is under scrutiny. Critics highlight inefficient service design, poor implementation, and adversarial processes that cause family‐level distress. Unmet needs deprive children of learning, harming long‐term prospects. Legislative changes in 2014 mandated professionals from multiple sectors to produce integrated child‐centred support plans. Since then, little peer‐reviewed research has asked professionals about key influences on SEND provision, interagency working or service‐user outcomes. We conducted focus‐group discussions with 35 SEND professionals, using a topic guide co‐developed with parents/carers of children with SEND. Thematic analysis identified several system‐level influences: increasing bureaucracy which diverted resources from early intervention; increasing SEND presentations and complexity; inadequate resources and training; over‐dependence on parents'/'carers' advocacy; poor relationships with families; harmful education policies. Good interagency working depended on information sharing, relationships, shared understandings of SEND and access to specialists. Long waiting‐lists, delayed provision and gaps in post‐16 services worsened children's outcomes. Securing SEND provision was said to punish parents/carers; children with fewer resources were unseen. Repairing the system requires parallel actions to increase human resources, improve training and interagency working, and reduce parent/carer burden when obtaining SEND provision. Without substantial investment, delivering a child‐centred system that meets needs remains impossible.

Description

Journal Title

Journal of Research in Special Educational Needs

Conference Name

Journal ISSN

1471-3802
1471-3802

Volume Title

Publisher

Wiley

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Except where otherwised noted, this item's license is described as Attribution 4.0 International
Sponsorship
Great Ormond Street Hospital for Children NHS Foundation Trust (20PE06)
This research was supported by Health Data Research UK under grant No. LOND1), which is funded by the UK Medical Research Council and eight other funders. TF is supported by a National Institute of Health Research (NIHR) senior investigator award (https://www.nihr.ac.uk/). All research at the Department of Psychiatry in the University of Cambridge benefits from the NIHR Cambridge Biomedical Research Centre (NIHR203312) and NIHR Applied Research Collaboration East of England. This study/project is funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (Grant Reference number NIHR- NIHR202025). The funders did not play any role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.